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New York State Traumatic Brain Injury Coordinating Council Meeting Notice

The Traumatic Brain Injury Services Coordinating Council (TBISCC) will meet this Thursday, April 14, 2011 from 10:30 a.m. – 3:30 p.m., at the Empire State Plaza, Concourse Level, Meeting Room 125, Albany, New York.

The TBISCC is charged by the New York State legislature with recommending to the Department of Health long range objectives, goals and priorities. It shall also provide advice on the planning, coordination and development of services needed to meet the needs of persons with traumatic brain injury and their families.  I am honored to be the elected chair of the council.

The agenda for this meeting is:

10:30am – 10:45am          Welcome, Introduction of New Members,

Review and Approval of Minutes from the December 6, 2010 Council Meeting

10:45am – 11:15pm          DOH senior staff attendance to discuss the following to the extent possible:

•         executive budget – possible implications for TBI

•         identification of new administration/staff

•         report back on service coordinator involvement in fair hearing process

•         update on the status of the universal screening tool/its potential to replace the PRI for appropriate access to TBI waiver services

11:15pm – 12:00pm          Presentation: Analysis of the TBI service provider surveys with follow-up questions and TBISCC member discussion/input.

12:00pm – 12:45pm                    Lunch

12:45pm – 1:15pm            Subcommittee reports –

•         Healthcare Reform/Non-Waiver Service Needs

•         Public Awareness/ Injury Prevention and Information Dissemination

1:15pm –1:45pm               Veteran’s Activities and Service Update (to be confirmed)

1:45pm – 2:00pm              TBI Waiver Update

2:00pm – 2:30pm              Carry Over Issues from Last Meeting

2:30pm – 3:15pm              Public Comment/Summary/Next Steps/Adjournment

3:15pm – 3:30pm              Meeting Wrap-Up/Date for next meeting

This meeting is open to the public and all persons interested in traumatic brain injury are invited to attend.

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Comments

Glenn Ford, Advocate for People and Families Living with Brain Injury

I am interested in knowing why New York has selected a "Traumatic" Brain Injury Coordinating Counsel?
As I understand the various definitions “A traumatic brain injury (TBI) is caused by a blow or jolt to the head or a penetrating head injury that disrupts the normal function of the brain." The definition, CDC, of "Traumatic" has changed at least 3 times in nearly 12 years and at one time a penetrating force to the brain was not considered a "traumatic brain injury" - I suspect more for statistical purposes(?)
Many States have adopted "Traumatic" as the definition for services - which excludes various other forms of brain injury. These include, but are not limited to hypoxia/anoxia, electrical shock, infections, etc. thus denying services to many individuals. The military has taken just such an approach and many soldiers are having difficulty proving brain injury as a resust of hypoxic/anoxic brain damage from IED explosions.
With all due respect, it is my humble opinion that the Brain Injury community needs to be focusing on "Acquired Brain Injury"; Of which "Traumatic" brain injury is but one causation. We should be looking at the damage to the brain and the individual, and not focusing on the causes.
The World Health Organization, American Psychological Association and many others are using a more broad view - simply Brain Injury (Acquired).
Kind regards,

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