Brain Injury Association Information, Brain Injury Legislative News, Current Affairs

Brain Injury Association of America Legislative Update

The following legislative update was prepared by the Brain Injury Association of America (BIAA).   

Protection and Advocacy for Veterans Act

Members of the Consortium for Citizens with Disabilities (CCD) Task Force on Veterans and Military Families submitted a letter of support last Friday to Representatives Martha Roby (R-Ala.), Dina Titus (D-Nev.), Timothy Walz (D-Minn.) and Lee Zeldin (R-N.Y.), sponsors of H.R. 5128, the "Protection and Advocacy for Veterans Act." H.R. 5128 would establish a pilot program within the Department of Veterans Affairs (VA) to ensure veterans receive proper support in the areas of mental health and substance use. As a member of the CCD Task Force, the Brain Injury Association of America (BIAA) signed the letter.

NIH Pediatric Concussion Workshop

On Oct. 13-14, 2016, the National Institutes of Health (NIH) is sponsoring a Pediatric Concussion Workshop to bring together experts in the field of pediatric concussion to present their most recent findings. The goals of this workshop are to: (1) identify gaps in knowledge about pediatric concussion, (2) identify high priority areas of research in pediatric concussion, and (3) identify populations and study designs that will prove most feasible for addressing knowledge gaps. The workshop will be held at the North Marriott Hotel & Conference Center, Bethesda, Maryland. Participating NIH institutes are the National Institute of Neurological Disorders and Stroke (NINDS); National Center for Medical Rehabilitation Research (NCMRR); National Institute of Child Health and Human Development, known as the Eunice Kennedy Shriver Center (NICHD); and the National Institute on Drug Abuse (NIDA). For details,  click here

CDC Report on Guideline for Managing Mild TBI

The Board of Scientific Counselors (BSC), an advisory board to the Centers for Disease Control and Prevention (CDC), met last week and accepted the mild traumatic brain injury (mTBI) workgroup report prepared for Congress. The BSC recommended that CDC move forward with developing the mTBI guideline. More information on the public comment period for this guideline will be forthcoming as that process gets further underway. The TBI Act Reauthorization of 2014 directed the CDC, in consultation with the National Institutes of Health, to conduct a review of scientific evidence related to brain injury management in children and to submit a report to Congress in 2016. CDC's Injury Center is expecting to release the report around the annual Congressional Brain Injury Task Force Awareness Day in March. Click here to review the report.

September 16, 2016 | Permalink | Comments (0)

Brain Injury and Sports, Brain Injury Association Information, Brain Injury Events, Brain Injury Legislative News

Congressional Brain Injury Caucus Briefing Scheduled for Tuesday Sept 13 on CTE

Neuroscience Caucus to Hold Briefing on CTE Next Week

On Sept. 13, 2016, the Congressional Neuroscience Caucus and the Congressional Brain Injury Task Force, in partnership with the American Brain Coalition, the American Academy of Neurology, and the National Association of State Head Injury Administrators, will present a briefing that explores our current understanding of sports-related injuries and research efforts aimed at gaining a deeper understanding of these injuries on the human brain. The briefing, "Sports-Related Brain Injuries: From the NFL to the Laboratory," will be held from 3 p.m. - 4:30 p.m. at the Capitol Visitors Center H-201A-B. This briefing will feature Chris Borland, a linebacker formerly of the San Francisco 49ers who stunned the sports world by retiring after one year in the NFL due to concerns about CTE. Chris is now forming a foundation to work with high school athletes who serve their communities. Dr. Ann McKee, a professor of Neurology & Pathology at Boston University, who is a renowned brain researcher and one of the leading authorities on TBI and CTE in the nation, will also be presenting information.

September 9, 2016 | Permalink | Comments (0)

Brain Injury Association Information, Brain Injury Legislative News, Current Affairs

Important action alert from the Brain Injury Association of America concerning the Americans with Disability Act

 The following alert has been issued by the Brain Injury Association of America concerning proposed amendments to the Americans with Disabilities Axt:       

The Americans with Disabilities Act (ADA) is once again under attack!   This summer, the Judiciary Committee in the U.S. House of Representatives passed H.R. 3765, the ADA Education and Reform Act of 2015, which would limit the power of the ADA and reduce compliance with the law.   Businesses have had 26 years to comply with the accessibility requirements of the ADA. Now, H.R. 3765 has been introduced to impose several additional steps on plaintiffs before they can file a civil action for an accessibility violation in a public accommodation case. H.R. 3765 would also impose criminal fines if demand letters or other pre-suit notifications alleging violations of ADA public accommodation requirements are not sufficiently specific.   These proposed restrictions and penalties go against the intent of the disability rights statute by putting up barriers and limiting the ability of people to assert their rights with regard to public accommodations. For these reasons, we urge you to contact your Congressional Representative to oppose the bill. Please contact your Congressional Representative today!  To contact your Representative, go to this website and enter your zip code. You can email your comments from the Member's webpage, which will also have other contact information. You may also call the U.S. House of Representatives switchboard at 202-224-3121 and ask for your Representative. Once connected to your Representative's office, tell them your name, address, and let them know: "Please oppose H.R. 3765, the ADA Education and Reform Act of 2015." Message points:

  • Equal treatment is a fundamental purpose of the ADA. People with disabilities must not be treated in a different or inferior manner.
  • H.R. 3765 goes against the disability rights principles of equal access to all Americans by removing incentives for businesses, social service establishments, and other places of public accommodation to comply with the ADA's accessibility requirements, unless and until an individual with a disability recognizes that the place of public accommodation is out of compliance with the ADA's requirements and provides the entity with written notice in precisely the right manner. 
  • HR 3765 requires a person with a disability to give a business owner who has barriers to access a written notice. The business has 60 days to acknowledge the problem and, then, another 120 days to begin to fix it. No other civil rights group is forced to wait 180 days to enforce their civil rights.
  • People with disabilities are important consumers of goods and services, but to be good consumers, they need access and to be integrated into the community.
  • We are an aging America. Many older adults, whether they have disabilities or not, find accommodations make it easier to shop at the grocery store and attend community events. 

Thank you for taking ACTION to move this important legislation!             

 

September 8, 2016 | Permalink | Comments (0)

Brain Injury Association Information, Brain Injury Legislative News

Congressional Brain Injury Task Force to Host Briefing on Women and Traumatic Brain Injury

The Congressional Brain Injury Task Force in association with the Brain Injury Association of America have scheduled a Congressional briefing: Women and Traumatic Brain Injury: A Frontier Yet to be Explored for Tuesday, June 14, 2016 from 2:30 pm - 4:00 pm at the Rayburn House Office Building.

June 11, 2016 | Permalink | Comments (0)

Brain Injury Association Information, Brain Injury Lawyers and Law, Brain Injury Legislative News

Neuro-Data Bill Needs Your Support--Critical Action Alert

We have been requested to circulate the following action alert by the Brain Injury Association of America (BIAA)

Brain injury advocates have helped get the Advancing Research for Neurological Diseases Act (S. 849) further than it has ever advanced in the U.S. Senate. This bill would establish a data collection system to track the incidence and prevalence of neurological diseases including brain injury. Having passed committee unanimously in February, the next few weeks are critical in determining whether the Senate will bring the bill-along with other medical innovations bills-to the floor for a vote.

Email or call your U.S. Senators today to urge them to continue working in a bipartisan fashion to bring the medical innovations bills-including S. 849-to a vote. To find your Senators contact information including email address click here. Or call your Senators. Call the Capitol Switchboard at 202-224-3121.

Sample Email/Script Language

As a person with a brain injury or brain injury advocate or brain injury professional and constituent, I am contacting you today to ask that you help bring the Senate's medical innovations package to the floor and vote YES on the package. The policy proposals found in this legislation are bipartisan and were passed by the Senate's Health, Education, Labor, and Pensions (HELP) Committee. Of particular importance to people affected by brain injury and other neurological conditions and diseases is inclusion and passage of the Advancing Research for Neurological Diseases Act (S. 849).

Emerging therapies offer promise of cures for life-threatening diseases such as brain injury, Alzheimer's, MS, cancer, Parkinson's, and others. We are on the cusp of personalized medicine that takes into account a patient's unique genetic, environmental, and lifestyle factors. We must ensure research and regulatory institutions can keep pace. This pending legislation would streamline and modernize the biomedical research pipeline, and help bring new, safe and effective treatments and cures to Americans.

I am particularly grateful that the medical innovation bill includes S. 849-which would establish a data collection system to track the incidence and prevalence of neurological diseases. This system will provide a foundation for evaluating and understanding aspects of neurological diseases on which we currently do not have a good grasp such as the geography of diagnoses, variances in gender and disease burden-also helping expedite our path to cures.

I respectfully request you advocate to your colleagues to bring the Senate's medical innovations package including S.849 to the Senate floor and vote YES for this important legislation.

Sincerely,

Your Name and Signature

May 19, 2016 | Permalink | Comments (0)

Brain Injury and Sports, Brain Injury Association Information, Brain Injury Lawyers and Law, Brain Injury Legislative News

Youth Sports Concussion Act Moves Out of Committee

Legislative News from the Brain Injury Association of America:

The United States Senate Committee on Commerce, Science, and Transportation, chaired by Senator John Thune (R-S.D.) passed the Youth Sports Concussion Act, S. 2508 out of the committee on Wednesday, April 27, 2016. The Youth Sports Concussion Act is sponsored by Senator Tom Udall (D-N.M.) and in the House of Representatives, Reps. Bill Pascrell, Jr. (D-N.J.) and Thomas J. Rooney (R-Fla.), co-chairs of the Congressional Brain Injury Task Force. BIAA thanks Chairman Thune, Ranking Member Nelson (D-Fla.), and Senator Udall for their leadership on moving this important piece of legislation forward.

The Youth Sports Concussion Act expressed the sense of Congress that the Consumer Product Safety Commission (CPSC) and the Federal Trade Commission (FTC) should review the National Academies' report on sports-related concussions and future research in such area for any matter that may impact products under the CPSC's jurisdiction or inform the FTC's efforts to protect consumers.

The bill makes it unlawful to sell or offer for sale in interstate commerce, or import into the United States for such purposes, athletic sporting equipment for which the seller or importer makes any deceptive claim with respect to the safety benefits of such an item. Violations shall be treated as unfair or deceptive acts or practices under the Federal Trade Commission Act. The bill sets forth the enforcement authority of the FTC. States may bring civil actions in federal court to obtain injunctive relief on behalf of state residents unless a civil or administrative action has already been instituted by the FTC. The FTC may intervene and appeal in state actions.

The Youth Sports Concussion Act is an important piece of legislation because it will protect our nation's youth who participate in sports related activities from concussions and other injuries by discouraging false advertising claims regarding protective equipment used in competitive sports.

BIAA and NASHIA recently spearheaded a letter of support to the Senate Commerce Committee to include the Youth Sports Concussion Act in the next executive session. Thirty six organizations signed on in support of moving this important legislation through the committee process.

April 29, 2016 | Permalink | Comments (0)

Brain Injury Association Information, Brain Injury Legislative News

Brain Injury Association of America Legislative Update

The following legislative update has been prepared by the Brain Injury Association of America (BIAA), the nation's oldest and largest brain injury advocacy group:

BIAA Submits Testimony to the House and Senate Appropriations Committees This week, the Brain Injury Association of America (BIAA) submitted testimony to the House and Senate Labor, Health and Human Services, Education, and Related Agencies. The appropriations request includes:

TBI Model Systems

BIAA calls on Congress to Support the TBI Model System program by increasing funding by $13 million over the next six years:

  • Increase funding for the National Data and Statistical Center by $100,000 annually to allow all participants to be followed; when re-competed, increase from $625,000 to $1 million annually;
  • Increase funding for centers by $150,000 annually from the current average of $437,500;
  • Increase the number of competitively funded centers from 16 to 18; and
  • Increase the number of multicenter TBI Model Systems Collaborative Research projects from one to five, each with an annual budget of $1.5 million (current funding is $600,000 each).

BIAA also urges that the TBI Model Systems receive "line-item" status within the broader NIDILRR budget.

TBI State Grant and Protection and Advocacy Grant Programs

On Oct. 1, 2015, the HHS Secretary transferred the TBI State Grant program to the Administration for Community Living, Administration on Disabilities' Independent Living Administration and the Protection & Advocacy (P&A) Grant Program to the Administration on Intellectual and Developmental Disabilities. Only 20 states receive TBI State grants, and all the P&A grants are severely under-funded.

  • Appropriate $9.76 million to fund the Federal TBI State and P&A Grant Programs plus an additional $1 million for the Federal TBI State Grant Program to increase the number of State grants (4 additional states) and $2 million total for the P&A Grant Program to increase the amount of grant awards.

Centers for Disease Control and Prevention The TBI Act of 1996, as amended, authorizes funding for data, prevention, public education and research.

  • Support CDC in its mandate to review the scientific evidence related to brain injury management in children and identify opportunities for research;
  • Support TBI national surveillance;
  • Appropriate $10 million to fund CDC's TBI programs; and
  • Support the President's Fiscal Year 2017 budget request for $5 million for the CDC to accurately determine the incidence of sports related concussions among youth ages 5-21.

BIAA Advocates to Advance the Youth Sports Concussion Act

BIAA and the National Association of State Head Injury Administrators (NASHIA) spearheaded a stakeholder letter to urge the Senate Commerce Committee and the House Energy and Commerce Committee to include the Youth Sports Concussion Act (HR 4460/S. 2508) in the next executive session. The Youth Sports Concussion Act is sponsored by Senator Tom Udall (D-N.M.) and Reps. Bill Pascrell, Jr. (D-N.J.) and Thomas J. Rooney (R-Fla.), co-chairs of the Congressional Brain Injury Task Force. Thirty six organizations signed on in support of moving this important legislation through the committee process.

The Youth Sports Concussion Act expressed the sense of Congress that the Consumer Product Safety Commission (CPSC) and the Federal Trade Commission (FTC) should review the National Academies' report on sports-related concussions and future research in such area for any matter that may impact products under the CPSC's jurisdiction or inform the FTC's efforts to protect consumers.

The bill makes it unlawful to sell or offer for sale in interstate commerce, or import into the United States for such purposes, athletic sporting equipment for which the seller or importer makes any deceptive claim with respect to the safety benefits of such an item. Violations shall be treated as unfair or deceptive acts or practices under the Federal Trade Commission Act. The bill sets forth the enforcement authority of the FTC. States may bring civil actions in federal court to obtain injunctive relief on behalf of state residents unless a civil or administrative action has already been instituted by the FTC. The FTC may intervene and appeal in state actions.

The Youth Sports Concussion Act is an important piece of legislation because it will protect our nation's youth who participate in sports related activities from concussions and other injuries by discouraging false advertising claims regarding protective equipment used in competitive sports.

April 18, 2016 | Permalink | Comments (0)

Brain Injury Association Information, Brain Injury Broadcasts, Brain Injury Events

Brain Injury Association of America--Newly Announced Webinars

The Brain Injury Association of America (BIAA) has announced the scheduling of the following webinars.  Further information can be obtained by clicking here.

April 21, 2016: 3 pm ET, 2 pm CT, 1 pm MT, noon PT

David Strauss Memorial Lecture: Cognitive Rehabilitation Focus on Awareness, Sheldon Herring, PhD

Dr. Herring will describe clinical implications and treatment of awareness deficits.

May 18, 2016: 3 pm ET, 2 pm CT, 1 pm MT, noon PT

Carolyn Rocchio Caregivers Webinar: Understanding Mood, Memory, and Behavior after Brain Injury: The Role of the Family, Sandeep Vaishnavi, MD, PhD 

Dr. Vaishnavi, Director of The Neuropsychiatric Clinic and author of the book The Traumatized Brain, will discuss ways to help families understand the long-term neuropsychiatric symptoms of brain injury, and offer strategies for how they can help. 

July 13, 2016: 3 pm ET, 2 pm CT, 1 pm MT, noon PT

Robert Sbordone Memorial Lecture: Gender and Sex Differences in Concussion, Katherine Price Snedaker, LCSW

Ms. Snedaker will discuss the latest gender-based research on concussion/mTBI and how those findings might inform clinical practice.

July 21, 2016: 3 pm ET, 2 pm CT, 1 pm MT, noon PT

Carolyn Rocchio Caregivers Webinar: How to Select the Right App and Use Strategies Consistently, Michelle Wild, MA

Ms. Wild will will pose four questions to ask when deciding which apps to download, go through each question to evaluate several apps to illustrate the process, and cover ways to improve the consistent use of compensatory strategies on a daily basis.

July 26, 2016: 3 pm ET, 2 pm CT, 1 pm MT, noon PT

David Strauss Memorial Lecture: Cognitive Rehabilitation Focus on Attention, John Whyte, MD, PhD

Dr. Whyte will discuss the organization of attention processes in the healthy brain, the occurrence and clinical implications of attention deficits following TBI, and cognitive rehabilitation strategies to improve outcomes.

September 14, 2016: 3 pm ET, 2 pm CT, 1 pm MT, noon PT

Mitchell Rosenthal Memorial Lecture: Use of Internal Strategies as a Memory Compensation Technique after Brain Injury, Mary R.T. Kennedy, PhD, CCC-SLP, McKay Moore Sohlberg, PhD, CCC-SLP, and Therese O'Neil Pirozzi, ScD, CCC-SLP

What are internal strategy options for post-TBI memory impairment? In this webinar, Drs. Kennedy, Sohlberg, and Pirozzi will discuss the evidence supporting various internal memory strategies and demonstrate the key systematic instructional principles for teaching internal memory strategies.

September 22, 2016: 3

pm ET, 2 pm CT, 1 pm MT, noon PT

BIAA Webinar: Post-TBI Headache, Nathan Zasler, MD, FAAPM&R, FAADEP, DAAPM, CBIST

Dr. Zasler will provide insights into the myriad causes of headache following brain, head, and/or neck injuries; review headache classification, etiology and pathophysiology; and describe treatment options for the various subtypes of PTHA.  

October 19, 2016: 3 pm ET, 2pm CT, 1pm MT, noon PT

Carolyn Rocchio Caregivers Webinar: Strategies for Families Managing Personality Changes after Brain Injury, Allan Grill, CRC, MFT

Mr. Grill will discuss how families deal with the personality changes a person with a brain injury might present after an injury; offer some insights into strategies families can use and useful resources for professionals to share with families; and include case scenarios, followed by a discussion about issues and concepts that families need to understand to effectively manage behavioral and personality challenges.

November 9, 2016: 3 pm ET, 2 pm CT, 1 pm MT, noon PT

Business of Brain Injury Webinar: A Review of Medicaid Waivers for TBI, Janet Williams, PhD

Dr. Williams will address the philosophy behind Medicaid Waivers, how they differ from state to state, how rehabilitation providers may provide services under the waivers, and how people with brain injury may access services through waivers.

 

April 17, 2016 | Permalink | Comments (0)

Brain Injury and Sports, Brain Injury Association Information, Brain Injury Events

New Documentary examines NCAA Commercial Exploitation of Athletes

Commercial exploitation of athletes, exposing college athletes to brain damage, using and abusing college students in the name of sports.  These are some of the topics explored in the first documentary examining the conduct of the NCAA.  The film, The Business of Athletes will be previewed on April 28th at 7:30 PM in  the Bronx at  the Showcase Cinema, Concourse Plaza, 214 E 161st St, Bronx, NY.  But only, if enough people purchase tickets in advance.  You can get more information by clicking here. Here is a link to the trailer and a review by the Mike O'Keefe of the Daily News, click here   The film maker, Bob DeMars has graciously selected The Brain Injury Association of America for donation's.

April 15, 2016 | Permalink | Comments (0)

Brain Injury Association Information, Brain Injury Events, Brain Injury Lawyers and Law, Brain Injury Legislative News

New York State Brain Injury Advocacy Day

The Brain Injury Association of New York State (BIANYS) has scheduled its first Brain Injury Advocacy Day for Wednesday, March 23 in Albany, New York.

Advocates will be traveling to Albany from all around the state to help legislators understand that many New Yorkers with brain injury need comprehensive, coordinated long-term care, and that changes proposed by the state Department of Health could lead to harmful service cuts for these individuals.

Your voice and participation in this event is important to alert your legislators to the importance of protecting the rights of victims of brain injury.

To join the Brain Injury Association of New York in Albany on March 23rd, please click here to for further information and to register.

March 14, 2016 | Permalink | Comments (0)