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Brain Injury Waiver Services Jeopardized in New York State

The New York State Department of Health (DOH) is attempting to cut services for individuals on the Traumatic Brain Injury Waiver Program by transferring them to managed care programs.  The insurance carriers who will then provide waiver services will eliminate necessary services.  A devious move by DOH who is no longer a friend of the brain injury community. 

DOH is not concerned with the brain injury community, but only concerned with saving money. 

The Brain Injury Association of New York State (BIANYS) has just issued an action alert:

Dear Friend and Supporters of the Brain Injury Association of NYS,

As you know, the TBI and Nursing Home Transition and Diversion (NHTD) Medicaid Waiver Programs are slated to move into the Managed Care system by next year. According to the Department of Health’s timeline, the transition plan will be finalized by April 1, 2016. Time is very limited to ensure that New Yorkers with brain injury keep receiving the services they need to stay in their communities.

BIANYS and other stakeholders are advocating for continued access to Waiver services for current and future participants. The Department’s proposed transition plan does not address the needs of this population and current outcomes show the use of the UAS assessment tool may result in 30% of all program participants losing services.

To ensure access to care, the Assembly and Senate have introduced requiring that a transition to Managed Care include the specialized services created for this specialized population, including Service Coordination. Click here for legislative proposals.

This proposed legislation details these services, reinstates the neurobehavioral resource project, includes a rate cell to protect people who need higher levels of care, and addresses repatriation for people with brain injury institutionalized out-of-state.


Contact your Assembly member asking for support of A.9288 and contact your Senator asking for a similar bill in the Senate. We have posted resources, including a suggested letter to download.  BIANYS web site information

Please share this information widely and encourage others to get involved and to join us in Albany on March 23 for Brain Injury Advocacy Day

Thank you, 



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